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WHEREAS, advances
in newborn screening technology, treatment options, and gene discoveries
now allow for the screening of a number of disorders in newborn
infants that were previously undetectable; and
WHEREAS, the
New Jersey Department of Health and Senior Services (DHSS) Newborn
Biochemical Screening Program provides the citizens of New Jersey
with screening of newborns for specific disorders that are detectable
and traceable so that affected individuals can obtain comprehensive
and coordinated care for the disorders from appropriate medical
specialists; and
WHEREAS, advances
in technologies continue to make it possible to expand the DHSS
Newborn Biochemical Screening Program to include screening for additional
disorders; and
WHEREAS, the
Newborn Screening Advisory Panel convened last year by the Commissioner
of Health and Senior Services established basic criteria for the
inclusion of a disorder in the state mandated Newborn Biochemical
Screening Program, which included the ability to test for the disorder
with an acceptable error rate, the life threatening nature of the
disorder and the availability of an acceptable treatment option
for the disorder;
NOW, THEREFORE,
I, DONALD T. DiFRANCESCO, Acting Governor of the Sexy真人y,
by virtue of the authority vested in me by the Constitution and
by the Statutes of this State, do hereby ORDER and DIRECT the Commissioner
of the Department of Health and Senior Services to empanel a Newborn
Screening Annual Review Committee (committee) that shall be charged
with reviewing disorders, newborn screening technologies, available
treatment options and the Newborn Biochemical Screening Program
on an annual basis. The committee shall meet no less than once each
calendar year, beginning with the 2002 calendar year. The committee
shall conduct its review, allow for public input and issue a recommendation
to the Commissioner of the Department of Health and Senior Services
on the improvement of the state mandated Newborn Biochemical Screening
Program.
GIVEN,
under my hand and seal
this day of in the Year of Our
Lord, Two Thousand and One
and of the Independence of the
United States, the Two Hundred
and Twenty-Fifth.
Donald
T. DiFrancesco
President of the Senate,
Acting Governor
Attest:
Chief Counsel to the Governor
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